The aim of the disability register is to help plan quality services for disabled children that are based on good factual information.
The Children Act 1989 requires all local authorities to keep a register of children with disabilities to help with planning and monitoring services.
In Luton and Bedfordshire, the following organisations are working together to build an effective register and the information gathered will be shared by all agencies:
The register of children with disabilities has nothing to do with child protection.
For the purposes of the register a child or young person is defined as disabled if he ot she is aged up to 18 years and can't do the everyday things that his or her peers can do.
We would like to know about your child if he or she has any of the following:
We would also like to know about your child if he or she has a Blue Badge, or is in receipt of middle or high rate disability living allowance. Registering your child does not mean automatic entitlement to any services.
In Luton and Bedfordshire we will use the register to:
We aim to produce a twice-yearly newsletter for parents and carers whose children are registered. This will inform families about events and developments locally and nationally and will keep people in touch with each other.
We'll use mailing lists that the register provides us with to consult with parents and carers about new developments and proposed changes.
The information will be kept confidentially on an individual system. Under the Data Protection Act you can make a request in writing if you wish to see the information held about your child.
The information will be used for research and to assist the planning of resources in health, education and social services. No information on individuals will be available.
The information will tell us whether or not we are providing the best and most useful services for every child in the county and help us to identify gaps in services and make improvements in the future.
We propose to review the register every two years to keep it up to date.
No, but unless we have a complete picture of children with special needs across the county it will be very difficult to plan existing services and develop new ones. It will also be difficult to let you know about new developments and services available.
We are committed to providing the best possible services for children with disabilities and to do this we need your help to identify the children in need.